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App Store Apps > Medical > The Duchenne Registry
The Duchenne Registry icon

The Duchenne Registry

3.3.7
Hello Thread
5.00
5 reviews
Free

5.00 ยท 5 reviews
Download from the App Store

About The Duchenne Registry

The Duchenne Registry was an overall app developed by Hello Thread. It was removed from Google Play Jun 11, 2026 and is no longer available for download.

Download Statistics

User Ratings

The Duchenne Registry was rated 5.00 out of 5 stars, based on 5 ratings.

App Information

The Duchenne Registry was free to download. The APK download size was 135.64 MB. The last available version was 3.3.7. The last update was on January 9, 2025.

Technical Requirements

The app had a content rating of Medium Maturity. The app had been available on Google Play October 2019.

Description
This Registry has been created specifically for individuals who have a diagnosis of Duchenne or Becker muscular dystrophy, and for carriers of Duchenne or Becker. Parents and guardians may register on behalf of children and teens with Duchenne/Becker. Individuals who live with or care for adults with Duchenne/Becker may also help with Registry participation by answering questions on their behalf. However, each registrant can only have one account in the Registry.

The goal of this Registry is to make the information you provide searchable and widely usable, while protecting your identity. Clinicians, researchers and pharmaceutical companies who access the Registry data can better understand Duchenne and Becker. The Registry data can also be used to make the research and clinical trial process faster and more efficient. In addition, the Registry also offers you access to information regarding clinical trials and research studies that may be a good fit for you or your child.

To better understand your health and your daily experience living with Duchenne/Becker, we will ask you to respond to several surveys. If you are a previous Duchenne Registry participant, your most recent survey data will pre-populate when you download the new app. We will also ask you to share a copy of your genetic test report. You can decide how much information you wish to share. However, the more data we have, the more we can share with researchers and the better we can tailor information to your specific needs.

Your name and contact information will never be given to anyone without your permission. The Duchenne Registry is deeply committed to protecting your privacy and identity, and will use every available measure to ensure the security of your personal information. In order to help advance research for Duchenne, we will share your de-identified data with eligible researchers around the world. De-identified means that personally identifying information, such as names and addresses, has been removed. The Registry team carefully reviews all requests for data and determines the validity and importance to the community.

Participation in the Registry is completely voluntary. It is your choice to participate. You may also stop participating for any reason and at any time. If you decide not to participate or if you decide later to withdraw from the Registry, we will not penalize you or ask you for an explanation.
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More data about The Duchenne Registry

Price Free to download
Rating 5.00 based on 5 ratings
Version 3.3.7
App download size 135.6 MB
Maturity Medium Maturity

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Changelog of The Duchenne Registry

No changelog data

Developer information for Hello Thread

Hello Thread

Address:

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Technologies used by The Duchenne Registry

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Alfa : Clinical Trial App icon Alfa : Clinical Trial App
Exon Map Explorer icon Exon Map Explorer
DELIVER DVA icon DELIVER DVA
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5051-201: Patient icon 5051-201: Patient

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