App profile & analytics · Business · Data updated 2026-09-29

followME Fabry Registry

by New England Survey Systems, Inc · Free · Version 1.0.0.4

Availability On the App Store since April 2018 ↗

followME Fabry Registry is made and published by New England Survey Systems, Inc. AppBrain is an independent app data site and isn't affiliated with New England Survey Systems, Inc. The app name, icon, screenshots and description belong to New England Survey Systems, Inc and are shown as published on the App Store.

About followME Fabry Registry

followME Fabry Registry is a business app developed by New England Survey Systems, Inc.

User Ratings

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App Information

followME Fabry Registry is freely available from the App Store. The app size is 6.49 MB. The latest version available is 1.0.0.4. The last update was on July 22, 2023.

Technical Requirements

The app has a content rating of Everyone. The app has been available on the App Store since April 2018.

Description by New England Survey Systems, Inc (from the App Store)

In participating in the followME Registry, not only are you a Pathfinder, you are also an ambassador for Fabry disease – thank you for being willing to share your journey. followME is a disease registry that will track the health of people living with Fabry disease over time. The goal is to evaluate how different types of disease management affect people living with Fabry. followME will gather and ultimately share data that can be used to support the broader Fabry Community. As part of the registry, you will be asked to fill out Patient Reported Outcomes (PRO) surveys using a secure website, smart phone or tablet. These systems are validated and secure, meaning that no one outside of the registry can access your data.

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Screenshots

Screenshots by New England Survey Systems, Inc, from the the App Store listing

Official page on the App Store

Alternatives to followME Fabry Registry

Changelog of followME Fabry Registry

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Developer information for New England Survey Systems, Inc

New England Survey Systems, Inc

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Technologies used by followME Fabry Registry

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