EDS Tracker

EDS Tracker turns the chaos of Ehlers-Danlos Syndrome into a structured record your rheumatologist, cardiologist, and PT can use. Log subluxations by joint, track dysautonomia vitals, map pain across your body, and walk into every appointment with months of evidence.

Built for adults and teens with hypermobile, classical, or vascular EDS, hypermobility spectrum disorder, and the comorbid conditions that travel with connective tissue disease.

🦴 JOINT AND SUBLUXATION LOGGING
• Subluxation and dislocation events by specific joint
• Joint location: shoulder, knee, hip, wrist, fingers, jaw, ribs, spine
• Hypermobility severity and Beighton score tracking
• Joint instability episodes with duration and reduction method
• Recurrence frequency per joint over weeks and months

📍 PAIN BODY MAP
• Full body map for joint-by-joint logging
• Pain type: aching, stabbing, burning, nerve, deep tissue
• Pain intensity on a 1 to 10 scale
• Affected side and migration patterns
• Widespread pain index for fibromyalgia overlap

🧠 FATIGUE AND COGNITIVE SYMPTOMS
• Fatigue severity scale with crash logging
• Post-exertional malaise and energy envelope tracking
• Brain fog intensity and concentration loss
• Sleep disruption and activity pacing tools

❤️ DYSAUTONOMIA AND POTS VITALS
• Heart rate sitting, standing, and supine
• Blood pressure with positional changes
• Presyncope and syncope episodes
• Hydration, electrolyte intake, and salt loading
• Heat intolerance and compression garment tracking

🧪 SKIN AND WOUND TRACKING
• Skin fragility and tearing incidents
• Wound healing timeline and bruising frequency
• Stretch mark and scarring changes

💊 MEDICATION AND TREATMENT
• Pain meds
• Muscle relaxants
• POTS meds
• MCAS treatments
• Mast cell stabilizers and leukotriene inhibitors
• GI motility agents for gastroparesis and IBS overlap
• Beta blockers for tachycardia management
• Supplements: magnesium, vitamin C, vitamin D, electrolytes
• Dose changes, side effects, and refill reminders

🏋️ PT AND EXERCISE LOGGING
• Physical therapy sessions with exercises performed
• PT homework completion and range of motion measurements
• Strengthening exercises with sets, reps, and tolerance
• Aquatic therapy and low-impact activity logs

🦺 BRACE AND SUPPORT TRACKING
• Brace use by joint with wear duration
• Ring splints, KT tape, orthotics, and mobility aids
• Cervical collar use for craniocervical instability

🩹 MCAS AND GI OVERLAP
• MCAS flare symptoms: flushing, hives, anaphylactoid reactions
• GI symptoms: reflux, bloating, nausea, gastroparesis, IBS
• Food triggers and elimination diet tracking
• Cervical instability: headache, vision changes, vertigo
• TMJ dysfunction and jaw subluxation

📊 INSIGHTS AND REPORTS
• Subluxation frequency by joint over time
• Flare patterns and trigger correlations
• Medication response and fatigue cycle analysis
• PDF and CSV exports for rheumatology, cardiology, PT, pain management

🔒 PRIVACY AND ACCESSIBILITY
• 30-second quick logging for flare days
• Voice-to-text input when typing hurts
• Health Connect sync for heart rate, steps, and sleep
• Biometric lock and offline mode

EDS is a whole-body connective tissue disease affecting joints, skin, vessels, and the autonomic nervous system. EDS Tracker connects subluxations, dysautonomia, pain, MCAS, and fatigue into one record your entire care team can read.

Disclaimer: EDS Tracker is for informational and personal tracking use only. It is not a medical device and does not provide medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional for medical concerns.

Recent changes:
Ehlers Danlos Syndrome Tracker now adds Lifestyle Trends and Recipes for daily planning.
- See pacing patterns in Lifestyle Trends with energy, activity costs, and a calendar.
- Plan meals in Recipes with a Shopping List for quantities, notes, and custom items.
- Log custom Measurements with Range, Yes/No, and True/False options.